
We have many folders and files of therapy reports and all things pertaining to autism in this house. They are everywhere. Literally.
The thing about anger is that it can have a profound effect on your day.
It changes how you view situations and people, how you act and how you think.
It can be a very dangerous emotion if it’s not handled correctly and today; I almost became a victim of my own undoing by indulging in allowing bitterness to overwhelm me.
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I’ll go back to give you all some context:
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Today, I turned the house inside out looking for the report for Harley’s psychological and behavioural assessments that we had done through the university almost 6 months ago now.
I had deliberately put these results aside when I received them in the mail because I simply wasn’t ready to deal with them at the time.
Well, ok, I did briefly skim through them when they first arrived but I have to admit that I didn’t really absorb any of it at all because I didn’t want to.
But the thing is: the psychologist that Harley has started seeing recently has requested a copy because it would be helpful for her to be able to see the best ways that she can communicate with him and help him. So I had no choice but to search for it.
And I found it. I read it and re-read it and read it again. But I couldn’t escape the fact that it was right there in print in front of me. It was very real.
The words: ‘low average range’, ‘below average’, ‘well below average’ and 8th percentile jumped out at me making me squirm. And from what I’ve seen at home, I believe that this particular report was very accurate.
But our school doesn’t necessarily agree.
Here is an excerpt from the report:
H’s pattern of performance across tasks indicates that he is experiencing difficulty across a range of cognitive domains including verbal reasoning and knowledge, working memory and his processing speed ability. He has particular difficulties in reading comprehension, spelling and numerical operations which supports Fiona’s initial reports… (Loved that bit).
Then it goes on to deliver further results and recommendations for more classroom aide, more learning support and more specialist attention in the school setting.
And this is the part where I burst into tears. I have literally gone around in circles tonight trying to ‘tidy up’ my initial post about my own personal reactions to the subject of aid (or lack there-of) in our school. What I wrote was very true, more than a bit controversial and very heartfelt but it was verging on venomous.
I hovered my mouse over the publish button several times but I wasn’t able to go ahead with it because I knew I had to calm down first and there was a part of me that just wasn’t comfortable with publishing such vitriol. That’s not – and never has been – my intention for this blog. I want to advocate not obliterate and I know too well that words spoken in anger can cause irreparable damage. So I trashed the whole post and I started again.
And no. I don’t think that I am taking the easy way out.
I am still extremely bothered that my child is desperately in need of extra aid and assistance that he’ll possibly never receive, but I have realised that I would achieve nothing good by giving in to angry tirades.
I need to go about this the right way; I just haven’t figured exactly what that is yet.
I am still in major doubt that the school really sees the big issues here. Don’t get me wrong: It is a great school and my children all have wonderful teachers but when you’re dealing with autism and all that it encompasses whilst in a mainstream setting: it will never be enough.In fact: not even close to enough. And that’s just the way it is.
So who is at fault here?
Well, I don’t think it’s either the school or us. The school offers what they can according to their funding allocations, and we enrolled our kids there because we believe in the school. Harley had no diagnosis when he started Prep. We were still viewing him as our ‘impossible child’ with shocking social skills and speech delays. We could not have predicted how things would eventuate 4 years down the track and could not have foreseen the extra needs that his disability brings with it.
The most pressing issue at the moment is that what the school sees, and what we live with are two polar opposites. School continues to tell me that Harley is a pleasure to teach, that he is doing wonderfully and that he is settling in well, meanwhile I’m still waiting for the last lot of my Harley-inflicted bruises to disappear and my own medication to kick in.
I hold no grudges because the school can only report on what they see and I can only report on my own reality. The fact that they don’t line up is what needs to be addressed here.
I have no choice right now but to give this all to God and truly believe that He is going to bring good out of this whole situation.
I simply cannot handle any more stress. I’m at my limit, so Jesus: PLEASE take the wheel.
Keeping all this in prayer my precious friend.
Love you and yours so very much. Lees. xxxx {{{{BIG HUG}}}} X
Thanks Lees x
The school will see what it is equipped to see – or a problem.
They don’t like seeing problems they want to see a situation they can work on (with a parent) to improve.
I really hope that this new psychologist is the answer to your prayers. God helps us all by putting us in contact with his messengers at the time he has planned for our lives to change.
You’re spot on correct Westie, thank you!
school next year for us and I have to say it fills me with dread. We get a lot already (from kindy or others ie family and friends) oh he’s come such a long way (and he has) and “hes so good here” (and he is mostly), but we too cop it at home (mainly me and his big sister who is so so patient and understanding but it (her brothers hitting and hurting and behaviour on the whole) hurts her physically and emotionally and I really do worry about the toll of this on her now and cumulatively over the years. Its changing and shaping her too. Autism is really a dx for the whole family).
So what I am trying to say is that I feel your pain/frustration. No answers sorry but walking a similar path and “get it” (perhaps just a few years behind as not in the school system proper yet…delayed it as long as possible and cant do so any longer next year is it).
I really wish the school system was different. The whole ‘your child must go into mainstream” but mainstream is soooooooooo lacking for our kids and just the very set up of school and all it entails is nothing short of a minefield for our kids. I walk through the playground and spend time in class with my big girl and I think of my boy there next year and see it through his eyes with all his challenges, his sensory needs, his auditory processing delays, his social skills, his …oh you know the guts of it. I see it and I think of him and my heart aches thinking about it.
No answers but understanding and prayers. Prayers for peace. Prayers for clarity and energy and hope and improvements all round. Hope and pray they see the disparity between the report and what they see (think they see?) in class. Hope and pray for staff at the school that “get it”, hope and pray they (school? Psych?) can come and observe in the home setting or in some other way (video footage?) they comprehend the 24/7 nature of degree of whats going on for you and your little one. Hang in there. You (and God) can do it x
I’ll keep you guys and your situation in prayer too Michele x
I really hope you find a way to improve your situation. We all feel for you!
Thank you!
Fi, after 1 year of mainstream school we have managed to move my girlfriend’s son to a specialist ASD school that focuses on communication difficulties. Like yourself, we hold no grudge against the mainstream school he was in but, with the best will in the world, mainstream schools just CANNOT give these chilcdren the full amount of attention that they need to enhance their strengths and prepare them for the big bad, neurotypical world. There are very few instances in life where it is not better to put ‘like’ with ‘like’.
Completely agree Chris. We are just at a bit of a roadblock atm
Have you tried switching his diet to a soy free, gluten free, and dairy free diet? I have read reports that, that actually does help tremendously for Autistic children. I am still doing my research, so I cannot attest to any facts in this or why it helps. However, throughout this whole process this is what I have read.
He is already gluten and (mostly) dairy free and we have seen improvements. Thanks
I always appreciate your honesty. Sadly, too many of us as parents know the feeling of being stressed to the max. I know your struggles all too well. I am dealing with many similar issues myself. My son is just a bit younger.
School systems can certainly be a frustrating load of crap. I like to believe they do their best but, I’ve talked to way too many parents & professionals alike that tell me they neglect things for financial reasons. They’ll tell you things are peachy when they aren’t just because they don’t want to fund even more extra services.
Rest assured, my dear friend. I stand by what I’ve said to you before about therapy. It’s just the beginning so it’s going to be stressful. However, I do think it will do Harley a world of good. Moms like us know these changes happen slowly..but they will happen.
*huge hugs overseas*
Thank you for the hugs. They are much appreciated
You’re only human. Nothing brings me to anger as quickly as feeling that my child has been slighted in some way. You’re right that letting the bitterness and venom take over isn’t productive, but neither is suppressing your feelings. Write it down; let it out. And then move on.
Absolutely. Writing = therapy for me
Oh no, Fi. Sorry to read this. Well done you for not publishing your initial post. You are right in that it is not good to publish in anger, however, I will say that it was very important for you to write it. Write it and then bin it. Hope you are okay. x
I agree with Bright Side’s comment. Hope things have picked up since then. I’m catching up on my reading tonight… ((HUGS!))
Yep, we’re all ok. Thanks guys xx
Sorry for the late responses to comments people. I’ve been a bit slack :/