No, all kids *DON'T* do that!

I was speaking to another mother this morning at school who asked me if I ever wished that my boys looked “more autistic” than they do?

I didn’t react badly because I know her well, and know she has a good heart and I completely understood where she was coming from.

She was basically asking me if I thought that society would be easier on them if they had an “obvious” disability rather than a “hidden” one.

(And one that a huge majority of the general public doesn’t even really believe exists anyway!)

And so I replied “yes”…..because I do think sometimes that it would be easier.

I can’t tell you how many times I’ve been in conversations with people and I have perhaps mentioned one of Harley’s obsessions only to be answered with, “But all kids do that”.

Or “Yeah, I know what you mean, my little Johnny is JUST like that too”.

I feel like answering them with something like “Well, if you child IS exactly like that, maybe you should get them assessed too”.

Let me give an example:

Most little boys liked Thomas the Tank Engine/ Bob the Builder/Elmo, or Buzz Lightyear etc when they were little.

Or maybe they love Ben 10/dinosaurs/rocket ships/trains or space as they get older.

And most little girls go through a Disney Princesses/My Little Pony/Barbie/My Littlest Pet Shop phase that can sometimes last years.

And some little girls have a fascination with faeries, puzzles/painting and animals.

And even if these interests DO last years…..it still doesn’t indicate a spectrum disorder.

It’s perfectly normal for children to like and be taken with these things.

After all…every year, millions of dollars are spent on marketing, research and advertising so that they DO appeal to all children and their target age groups !

But what might be an indication of a special interest perhaps being more of an autistic obsession can be when their love of that particular character/activity/object starts to interfere with their everyday functioning.

Another possible indication is if your child doesn’t actually seem to engage in make-believe play with these toys but spends hours lining them up in groups of colour/size/shape etc etc.

Like for example Harley and his current obsession; Ben 10

It is no longer just a passing interest.

He doesn’t just “like” Ben 10. He is completely and entirely consumed by him.

He told me the other day that he is sure that Ben 10 has aspergers too! (He probably does!)

Harley is refusing point blank to wear anything BUT Ben 10 pyjamas to bed. And after school he changes immediately into either a green tshirt and blue jeans (despite the heat outside) or failing that, another different coloured t-shirt with a Ben 10 character printed on it.

He simply will not let us read any other book to him at bedtime other than one of his collection of Ben 10 books.

He spends (what seems like) every waking moment talking our ears off about all the different aliens and due to his impaired social functioning, he has limited ability to read facial cues and will continue his monolgues about Kevin Levin, Gwen and the omnitrix until I literally want to stab myself in the eyeballs!

He also approaches strangers in the public places and tells them ALL about his favourite alien boy hero!

It doesn’t matter how many times I try to shift his focus, everything comes back to Ben 10!

Homework is a MEGA challenge…

Me: ”OK….What’s 5+7 Harley?”

H: “Mum, do you like the omnitrix or ultimatrix better?”

Me: “Focus Harley…I will answer you after your homework, now what’s 5+7?”

H: (sighs) “OK”… (counts on his fingertips)….”It’s 12 Mum, so which one do you like better?”

Me: “The omnitrix…it’s easier to say. Now how do you spell Lamb?”

H: “But the ultimatrix has more aliens, are you sure you don’t want to change your answer?”

Me: “Harley, we will talk about Ben 10 later…..now spell lamb please”

H: (getting agitated at me then shouts) “L-A-M..…Are you sure Mum”

Me: “Yes I’m sure. Could you please spell lamb again. That was wrong”

H: (really cranky now because he isn’t being allowed to obsess on Ben 10, then shouts at me again) “I SAID L-A-M!” (rolls his eyes)

Me: (trying to keep my cool) “Please don’t yell at Mummy, and no darling, it’s actually spelt L-A-M-B”

H: (rolling his eyes at me) “Well Mum, if you knew then why did you ask me… Derrrr!”

**

I quit.

Seriously.

**

So….if you’re a parent and you tell me that “My child does that” or “all kids do that” the next time I’m telling you about the nightmare I had last night trying to get TWO QUESTIONS ANSWERED….do me a favour and remember this post.

Then ask yourself : Does this interest of my child’s completely absorb them to the point that they are unable to function in any other capacity?

Has it become the ONLY thing they are able to focus on and rendered them completely unable to think/talk or act about anything else?

Does life for everybody in your family come to a complete standstill because nothing can get done until the child’s interest and related questions are acknowledged and dealt with?

If not…..please don’t tell me that “all kids do that”.

Because they don’t.

And it’s time like THIS that I wish that it was a more “obvious” disorder.

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36 thoughts on “No, all kids *DON'T* do that!

  1. yes.
    YES!!!

    I got a bit peeved at the vice principal last year when we had the SCAN review meeting for Perky. We were discussing eating and all the challenges it presents for Perky. He said, ‘all kids are fussy, my three year old sometimes eats one thing one day and refuses the next.’ I know he was trying to be understanding but it highlighted how misunderstood this aspect of sensory processing disorder is. And it simply is NOT true that kids will eat when they are hungry. My son refused all food for 3 days when we took him to Paris. He only drank his toddler milk.
    Yes, all kids do the same kinds of things, regardless of diagnosis or not, but as you say, when interest becomes obsession, it takes over your lives. We have had the ‘only wear the one t-shirt with Thomas the Tank Engine on it’ saga (solution? buy lots more TTTE t-shirts!) and the desire to endlessly repeat an episode – so he can ask questions about every single second of it. Most kids just don’t do that. It can lead to deeper use of language, which I like but it is hard work keeping patient and appearing interested after the same question has been asked 2 dozen times in the last hour!
    So, short response is, I hear ya, Fi!

    • actually,,,,,,our kids are so stubborn they could VERY EASILY starve to death! LOL

      I had to laugh too…..Harley has more Ben10 t-shirts than I can count!

      we found the same solution!

  2. That must be annoying. I think parents tend to try to find similarities between their kids as a way of bonding with each other. I can just imagine the steam coming from your ears when other people try to compare their kids to yours! p.s. you are the most patient person ever!

  3. I totally understand where you are coming from! It’s so hard to put up with that “all kids do that” thinking, but at this point, I just let it roll off my back and don’t really try to make them understand. Frustrating!

  4. That right there is my number 1 most hated statement ever. Today as we hopped into the car C spilt a tiny bit of water on the knee of his shorts, about the size of a NZ $2 coin.Cue major anxiety/sensory meltdown.I tried to convince him to keep them on (someone tell me why I fight it?).In the end we came back inside, got new undies(not wet),shorts and shoes and then left.When I got to where we were going and explained to my friends why we were late one of them said “all kids do that”.Are you f!@#%&^% kidding me!!!!All kids DO NOT DO THAT! (this makes me so angry that I am almost putting my fingers through the keyboard just typing it.

    • Oh yup!
      That sounds EXACTLY like something that would happen with both my boys. (And has many times).
      It is really irritating isn’t it!
      I can SO relate to the fingers through the keyboard rage!!

  5. I can so identify with that in my own life.

    I said some wrong things (innocently) on an e-mail list and things just exploded around me. I retreated to my Facebook to “lick my wounds” and was told by people that they were sorry I was hurting but that “these things happen to everyone.”

    My response, “on a weekly basis?” finally made them realize that I was talking about the same things they experience but for me the *frequency* and *intensity* are what make it pathological and not just a “normal part of the human experience.”

    • Frequency and intensity is definitely the difference.
      All people display some symptoms of an ASD from time to time, the thing that identifies someone as being on the spectrum is all down to Frequency and Intensity.

      Which is what gives so many people a false sense of empathy, a false sense that they know what we deal with, and a false sense that we make mountains out of molehills. It’s actually our kids elevating the molehills.

      FWIW, the only books we can actually finish at the moment are Thomas the Tank Engine ones. We are at a point where the little bugger is reading them in the lounge room. Pointing at the words, one at a time. But the book is in his bedroom at the opposite end of the house.
      He’s a word-perfect reader, well, for that set of 40 books anyway. Weather the book is in front of him, or not!

  6. s.i.g.h… the comments made by fellow readers are so heart-felt. I think that some people honestly don’t think before they speak. A lot of the comments made to you as mums with children on the Autism spectrum “somewhere” have been insensitive and obviously hurtful to you. The old adage about “reserving comments until you have walked in another’s shoes for a while” is not always adhered to. Surprisingly, the people who make the unkind comments are really trying to make you feel “better” ! The problem is, they don’t know what to say, or really even what they are talking about…

    As to the more “visible” disabilities … the few times it was necessary for our son to be pushed in a wheelchair he suddenly became DEAF!!!! I couldn’t believe how loudly people spoke to him! Also, he also suddenly aquired some type of mental disability which prompted them to— speak— very— slowly — with — him —-… Honestly, let’s face it: the general public doesn’t have a grasp of HOW to deal with people with a disability, or their carers. Some folk used to even ask his little sister questions INSTEAD of him!!! (She hadn’t really noticed that he was THAT different… he had ALWAYS been
    *”Cardiac Kid”…:)

    • Ooooh, that one makes me mad!
      I also never saw your son as any different to the rest of us kids growing up. He was always just one of us.
      I think you’re absolutely right though in saying that people are probably just trying to make us feel better.
      But they don’t realize that what they are “actually” doing is trivializing our kids difficulties by making it something that “all kids do”.
      I think I need to take a chill pill and get over it! LOL

  7. Hello my lovely Fi,
    My comment got far too long so I emailed you all my babble…giggle. ;) xx
    You are totally right people REALLY don’t get Aspergers at all, unless they live it.
    I had an obsession for a while on the film Logan’s Run. In this film the people all have gems embedded into their hand. I sometimes wish I had something like that to show others so I don’t get so many STUPID comments looping around my brain for days.
    Perhaps if all aspies had something like that we could (hold up our right hands palm facing, part our fingers and then say) “Hey you… I might look and act “normalish” but I got this look, so I’m a bit different to you…nanu nanu!” Then perhaps it would be more obvious and open their eyes.
    I have to laugh it off, you know me Fi.
    I live in my own world, it’s very nice here.
    Love you so very much.
    Leesy. xxxx

  8. Working in childcare for seven years, I came across instances where parents were using the ‘don’t all kids do that?’ line to try to justify the obsessive behaviour their child displayed. It was my duty of care to try to reach out to these families with the best of intentions to say, I’m sorry, but no, not all children sit for hours spinning the wheels on toy cars, or staring at the ceiling fan in the room, or sorting and categorising football cards all day long. Your posts this week are brilliant. xx

  9. Yes! Yes! Yes!
    You have written so well what I have struggled to tell people when talking about my son.

    I mention to people that he doesn’t like having his hair washed and needs lots of preparation (although this is improving). I get responses such as “oh, xxxx doesn’t like having their hair washed either and has a bit of a tantrum”. Said tantrum lasts 10 minutes. Uuummm, how about the fall out from springing a hair wash on your child lasting 24 hours? Meltdowns over EVERYTHING that follows? NOT the same!

    Or trying to explain that D is not just interested in garbage trucks, he is obsessed. Conversation similar to your homework one are common here (albeit with an almost 4 year old, and the topics slightly different). He draws them, counts them makes up songs about them, talks about them, builds them out of blocks, play-doh etc, pretends to be a garbage truck, and wakes the husband and I up at 1am because he thinks he is going to miss the garbage truck doing its rounds, so we need to open the front door to show him it is still the middle of the night. When the garbage truck is doing its rounds, we can’t move D from the front door.

    I realise the intentions are well meant, but it is so frustrating! All kids do NOT do these things.

    Thank you so much for writing this blog-post, it really explains what I struggle to say.

    • oooh, the hair washing one happens here too *sigh*

      AND THE GARBAGE TRUCK! YES YES YES YES!!!!!!

      We have that with our youngest child!!!

      So glad that others feel this way too!

  10. Hear, hear!!!!
    I’ve been so hurt when ‘friends’ disparage me with “Pfft, all kids do that” or “Mine does that all the time and there’s nothing wrong with my kids”.
    Grrrr.
    Watching the Cerebral Palsy ads on the tv the other day I thought that very thing – if autistic kids were more obvious there wouldn’t be twats claiming it was nothing/didn’t exist/underestimating it’s effects, etc.
    Otherwise, I say we hit the silly buggers in the face with a dead fish.
    Then tell them ALL autistic kids feel like that, and to get used to it!

  11. Yes- tell ‘em all to get their own kid assessed if they are so similar, instead of questioning the diagnosis!

    As for interfering with homework, I got this book: http://www.amazon.com/Power-Cards-Interests-Motivate-Children/dp/1931282013

    It explains how to use the special interest to motivate kids on the spectrum. You probably don’t need the book, but some of the suggestions are pretty useful, particularly when you can’t get him off-topic to do what he needs to. You might be able to get Ben 10 t work for you, then you probably wouldn’t mind him so much! :-)

  12. I love the idea of coming back with a suggestion to take them for an evaluation – absolutely love it!!!

    We have thankfully reached the stage where he will shift interests every few weeks, so we rotate around and occasionally add new ones into the mix once he get satiated with one.

    The most recent ones I can remember are Ben 10, various Mario and Donkey Kong games, Power Rangers, Lego Hero Factory, Lego Power Miners. I can’t tell you how many times I have been asked my favorite x or top three y. Ugh!

  13. Fi, were you eavesdropping on Ryan and me when we were trying to do his homework?? Because that conversation sounded AWFULLY familiar. (Just replace the Ben 10 references with Star Wars. . .they’re practically the same thing.)

    Yeah. It’s great when parents of little normies try to convince you there can’t POSSIBLY be something ELSE going on with your child.

    Rock. On.

  14. As frustrated as I get with people not understanding that the intensity and frequency of these issues is a lot of what sets them apart from NT experience, I also get frustrated with people who seem to want me to explain all of autism or my child’s particular version of it in about two minutes. They may have some passing interest, but they want a quick, easy box into which they can fit my kid and others like him.

    I’ve spent over a decade learning about my son’s issues and autism in general, and there’s still plenty that I don’t know. How in the world am I supposed to convey anything that could possibly be meaningful in just a few minutes?

  15. I laughed out loud at your description of homework vs. the obsession. (My son’s obsession is trucks) that’s my life every afternoon. Thanks for being so open about your struggles.

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