The day I realised what was really important…

So…We’ve all heard that old quote “don’t judge a book by it’s cover” at least once, if not dozens of times right?

I know that for me, it’s always been one of those cute little ditties that never really meant anything much to me.

In fact, growing up, I always used to take it literally.
As in, I wouldn’t necessarily NOT read a book because the front cover was un-interesting and boring but as I got older and (hopefully) wiser, I learnt that it can be applied to many different aspects of life.

Like for example……men!

I think my husband is spunky. (And to be honest, he thinks he’s pretty darn good too……can you say ‘conceited’ girls and boys?) LOL!

But I understand that men definitely ARE like onions! They have MANY layers!

Now……men are known for not being the most *ahem*….shall we say… “open” beings!

At times, I have had to peel off a helluva lot of layers of ‘macho’ to discover something even slightly resembling emotion in Mr Patient!

But here’s the great part….. I know it’s there now.

This past week where the two of us have been alone together whilst the kids have been having the time of their lives up at Grandma’s – has been wonderfully healing for both of us.

*********
I ummed and ahhed whether or not to blog about this next bit, but I eventually concluded that I made a promise to myself that I was always going to be upfront and honest to my readers whenever possible.
I owe you all at least that…….So here goes…

Late last year, I had decided that Mr Patient and I were over…I was leaving.

I’d made plans, enough was enough………we were finished, kaput, separating, done.

I hated his job that took him away from us so often.

I hated the fact that I was left alone to raise “challenging” kids a lot of the time.

And I hated that he didn’t seem to notice how exhausted I was becoming spiritually, emotionally, mentally and physically and that he really didn’t seem to care that he was adding to this.

I really felt like I hated him.

I was frequently caught up in damaging thought patterns such as:

“How dare he chose work over family”

“How dare he expect me to do this all alone”

“How dare he step down from his position as man-of-the-house.”

I teetered on the edge of mental breakdown every single damn day and was treading water for so long that I can’t remember even getting in the damn pool in the first place.

I was so angry. I was feeling hurt, deserted and over-stretched.

Then one day, I made a decision that autism had stolen ENOUGH from this family and I’d be damned if I was going to let it have my marriage as well.

It’s been written about numerous times over the years, that couples who parent a child with autism have a significantly higher divorce rate than those raising typical children.

I haven’t researched it fully myself but I can see why this would be the case.

Ok.

So there is evidence out there that a strain is placed on relationships that deal daily with the ups and downs of parenting an autistic child, but what about when one of the adults is also on the spectrum?

What then?

There is a part of me that realised that because of this fact….. Mr Patient was unable himself to cope with the constant drain of these noisy, unpredictable and extremely high maintenance kids.
But a louder and more aggressive part of me didn’t care and wasn’t prepared to give him the same grace that I happily give my kids in the same situations.

After all….he’s an adult now. I don’t need 4 kids.. he should just man-up and get over himself right?

Well….right AND wrong.

Yes, he should have pulled his weight (being that he is the other half of the parenting team), but no, because he was completely ill-equipped to recognise let alone cater to mine and the children’s individual needs at that time.

He opened up to me and told me that he has struggled with the boy’s diagnoses from day one.
He chose to go into a state of complete denial because he didn’t know what else to do.

Men aren’t allowed to cry whenever the urge takes them, or have deep and meaningful conversations with their mates. 
They rarely hug each other, they won’t admit when it’s tough and God-forbid they actually admit that they are feeling lost and hopeless – lest they have to hang up their crown jewels and be forever labelled a sissy.

This week, he told me that he had no idea that I was as close to leaping over the cliff as I was.

He acknowledged that he had in fact contributed to this in a very big way.

He said that he would watch me as I scoured the internet, books and papers researching autism constantly and regularly, he noticed that I was (seemingly tirelessly) running the kids between this therapy and that therapy and thought that I had it all under control.

I would often give him non-verbal clues that I wasn’t coping by huffing, sighing loudly, slamming down the receiver of the phone mid-way through a phone conversations with him, rolling my eyes at him or just dissolving into endless tears at in-opportune moments.

Turns out…..he didn’t read the cues at all.

His words when I exclaimed my exasperation with him one day were:
Well Fi, did you ever actually SAY that you weren’t coping?”

Um……No, not really, I guess not.

This was the start of the next chapter of our lives…HEALING.

*********

We just had the best week together since we were married way back in 1998 and I know that better days are coming.

It’s amazing how much better the human body copes with life when it’s rested, at peace and relaxed.

I am now able to focus more clearly on issues that need to be dealt with, without being so overcome with emotion that I can’t see sense, and I am a lot more able to “not sweat the small stuff” and take things one step at a time.

We were designed this way. To function healthily and calmly…NOT to live in a constant state of anxiety and emotional upheaval.

I know that this is all part of life and that we really DO have to go through a lot of hard, trying and testing times.

But the key word is “through“.

Not around the mountain, not over it, not under it, not beside it but through it.

Only then are we fully able to say that we made it through our trials.

And remember……It takes a lot of manure to grow a beautiful garden.

Happy 2011 everyone x

26 thoughts on “The day I realised what was really important…

  1. Fi,
    This was beautiful. I’m so sorry you were in such a crappy place. It’s unfortunate and true, that we Aspies sometimes need things to be completely spelled out in order for us to get it. I can’t tell you how many times Dickson and I have each said to each other, “Well how was I supposed to know that?! You never SAID anything!”

    And you’d think we’d both get how to work with each other. DUH!!! I’m glad you and Mr. Patient have found a way back to each other.

    {{{hugs}}}

  2. I can understand all you have written except the making up and getting through part… sniff… let’s just say we’re not even struggling, but have so much going on that we are in panic mode all the time. It’s hard. :(

  3. It’s touching to read about a couple struggling and then working things through. Thanks for sharing that.

    And, take heart! The “statistic” about 80% of marriages ending in divorce when a child is autistic was an incorrect statement put forth and repeated all over the place. As it turns out, 64 percent of children with an autism spectrum disorder have married parents, compared with 65 percent of children without the condition.

    That is what statisticians call “not statistically significant.” In other words, it’s pretty much the same divorce rate whether kids have autism or not.

    Here’s an article about it:
    http://articles.cnn.com/2010-05-19/health/autism.divorce.rates_1_autism-experts-parents-of-autistic-children-autism-spectrum-disorder?_s=PM:HEALTH

    Be well and Happy New Year to you and your beautiful family.

  4. the most raw, honest, beautiful post I’ve read in a while. You shared what so many of us experience, and your bravery in sharing it will make the rest of us better wives and husbands. This post came from deep down in your soul, and I’m so proud of you and your husband for coming to the place where you are now.
    I hope you no longer feel guilty about this week away. I’d say this could been the most important week of your life.

  5. Fiona, thanks for writing it down.. I could not believe you told us your most private story with so much conviction, but I am not surprised that you chose to fight the anguish and confront it openly like how you did.. Bravo! I am so glad you are ‘through’ this and you both understand what the other one has been going through.. It is a great post, in all ways, the lessons and the truths it sends across..
    Only the best for your family and you two!
    Rach

  6. Fi, thank you for sharing this , you seem to have both gone through hard times dealing with them in different ways, but have now found a way to resolve to go through whatever the future brings united and strong. So pleased for you all!

  7. Hooray! This is so heartwarming, and I’m SO glad the two of you got time to yourselves. I think a lot of us find it hard to be so explicit too, but it definitely makes communication better when everyone understands each other.

    I’m so pleased the two of you are working on understanding each other better. And I hope you manage to get more time to yourselves too this year. It is something we all need to do, but easier said than done! :-)

  8. Fi,
    Alysia said it best already above, but truly thank you for this post! I did not quite reach the point you did, but we too had to learn how to communicate with each other after the diagnosis. I think us NTs have a harder time actually using our words sometimes or at least I have had this problem in the past. I’m learning to speak up and it really does help.

    I’m so happy for the two of you! :-)
    Aloha,
    Sue

  9. Its hard to comment on such a story, especially when you are a player in it, but like my wonderful wife has done I will put finger to keyboard and add just a short part to this story.

    Yes its true I used to get p*&&#d off when Fiona went onto facebook and buried her head into the laptop (and now the damn iPad I enabled her with) searching the internet.

    I felt as though she just didn’t want to talk to me, and that the internet had become her “partner”.

    Yes, I guess it is hard for an aspie to pick up on facial cues etc, but whether you are an aspie or not, the key to any relationship is that word we ALL seem to miss these days – communication.

    And that’s just what this week together allowed us to do. Communicate in that old fashioned way, speaking to each other.

    Call it an epiphany, but I now realise how important it is to forget about work and all the other pressures and communicate with the WHOLE family.

    I thank you Fiona for sticking by me, you’re right, we will work through it and the best days are just ahead.

    AND A SUPER BIG THANK YOU to Fiona’s mum for putting herself out for the week with the children.

    Mr Patient xox

    • Thanks baby :)
      BTW….I couldn’t help myself. I had to go and edit out all the spelling and grammar mistakes you made in your comment.
      They were driving me NUTS, and you know what a nazi I am about these things! x

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